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Publications

Publications by HumanISE

2022

Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies

Authors
Swertz, M; van Enckevort, E; Oliveira, JL; Fortier, I; Bergeron, J; Thurin, NH; Hyde, E; Kellmann, A; Pahoueshnja, R; Sturkenboom, M; Cunnington, M; Nybo Andersen, AM; Marcon, Y; Gonçalves, G; Gini, R;

Publication
Yearbook of medical informatics

Abstract
OBJECTIVES: Existing individual-level human data cover large populations on many dimensions such as lifestyle, demography, laboratory measures, clinical parameters, etc. Recent years have seen large investments in data catalogues to FAIRify data descriptions to capitalise on this great promise, i.e. make catalogue contents more Findable, Accessible, Interoperable and Reusable. However, their valuable diversity also created heterogeneity, which poses challenges to optimally exploit their richness. METHODS: In this opinion review, we analyse catalogues for human subject research ranging from cohort studies to surveillance, administrative and healthcare records. RESULTS: We observe that while these catalogues are heterogeneous, have various scopes, and use different terminologies, still the underlying concepts seem potentially harmonizable. We propose a unified framework to enable catalogue data sharing, with catalogues of multi-center cohorts nested as a special case in catalogues of real-world data sources. Moreover, we list recommendations to create an integrated community of metadata catalogues and an open catalogue ecosystem to sustain these efforts and maximise impact. CONCLUSIONS: We propose to embrace the autonomy of motivated catalogue teams and invest in their collaboration via minimal standardisation efforts such as clear data licensing, persistent identifiers for linking same records between catalogues, minimal metadata 'common data elements' using shared ontologies, symmetric architectures for data sharing (push/pull) with clear provenance tracks to process updates and acknowledge original contributors. And most importantly, we encourage the creation of environments for collaboration and resource sharing between catalogue developers, building on international networks such as OpenAIRE and research data alliance, as well as domain specific ESFRIs such as BBMRI and ELIXIR. IMIA and Thieme. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.

2022

Digital Nomads during the COVID-19 Pandemic: Evidence from Narratives on Reddit discussions

Authors
De Almeida M.A.; Correia A.; De Souza J.M.; Schneider D.;

Publication
2022 IEEE 25th International Conference on Computer Supported Cooperative Work in Design, CSCWD 2022

Abstract
In this paper, we report on new findings about the results of an empirical study which aims to investigate how the COVID-19 pandemic has been shaping nomadic work practices and also challenging the lifestyles of digital nomads (DN). To do this, we collected textual data from posts in a Reddit community. We argue that, in order to understand how to design technical solutions for the so-called 'new normal' working conditions, one way to approach this is to understand how digital nomads are being impacted in their work practices and routines, and also how they are seeing the future of their technology-mediated work-life space. Finally, we show how evidence collected from DNs about their experiences and difficulties perceived during the pandemic period can inform CSCW researchers worldwide about future design-oriented strands.

2022

The Role of Wannabes in the Digital Nomad Ecosystem in Times of Pandemic

Authors
Antonio De Almeida, M; Moreira De Souza, J; Correia, A; Schneider, D;

Publication
Conference Proceedings - IEEE International Conference on Systems, Man and Cybernetics

Abstract
The purpose of this paper is to reveal a set of new results obtained from an ongoing investigation focused on the way that the particular characteristics which are inherent to 'wannabe' digital nomads' activities contribute to the sustainability of the whole digital nomad ecosystem. In line with the premise of this research, we assume the importance of understanding the impacts that are being felt in the personal knowledge management ecology practices and routines of digital nomads as experienced by a specific online population (i.e., Reddit user base), together with a deep and wide examination of their preferences and expectations regarding the technology-mediated work-life issues that exert a direct influence on the digital nomad community. To this end, we gathered and further processed text posts and comments from users in the '/r/digitalnomad' subreddit. From a sociotechnical standpoint, the empirical data extracted from this sample population about the wannabe/how to be digital nomad symbiotic ecosystem can provide insightful information for researchers worldwide about future design-level interventions. © 2022 IEEE.

2022

Collaboration in relation to Human-AI Systems: Status, Trends, and Impact

Authors
Correia, A; Lindley, S;

Publication
Proceedings - 2022 IEEE International Conference on Big Data, Big Data 2022

Abstract
In this paper we present findings from a bibliometric evaluation of scientific publications on human-AI systems, indexed in the Dimensions database over the past five years (2018 to 2022). The study maps the research landscape in this burgeoning area, as it relates to the topic of collaboration. To this end, we assessed publication and citation counts over time, authorship-level indicators, and keyword occurrence frequency. We also examined funding information as an indicator of research priorities, alongside usage-based statistics and alternative metrics such as social media mentions, recommendations, and reads. Our preliminary findings highlight a significant focus on aspects like trust, explainability, transparency, and autonomy in highly complex scenarios through the use of generative models and hybrid interaction techniques. The results also reveal a growth in the number of publications and funding grants, although a certain lack of maturity is observable in terms of citation patterns and coherence of thematic clusters. © 2022 IEEE.

2022

Summary of the artifact accompanying the article "Designing Microservice Systems Using Patterns: An Empirical Study on Quality Trade-Offs"

Authors
Vale, G; Correia, FF; Guerra, EM; Rosa, TD; Fritzsch, J; Bogner, J;

Publication
2022 IEEE 19TH INTERNATIONAL CONFERENCE ON SOFTWARE ARCHITECTURE COMPANION (ICSA-C 2022)

Abstract
This package provides all published resources used and produced in the context of the research study leading to the article "Designing Microservice Systems Using Patterns: An Empirical Study on Quality Trade-Offs", presented in ICSA 2022's technical track. It includes materials used to conduct the study as well as aggregated and anonymized data produced in its context. Making this package available intends to foster transparency and to support researchers attempting to replicate the study. The package complies with the Research Object Reviewed (ROR) and Open Research Object (ORO) badges, awarded by the Artifact Evaluation Track at ICSA 2022, and is available under Creative Commons Attribution 4.0 International. The package is openly available in Zenodo [1] and the article is available in ICSA 2022's proceedings [2] and as a pre-print [3]. © 2022 IEEE.

2022

Designing Microservice Systems Using Patterns: An Empirical Study on Quality Trade-Offs

Authors
Vale, G; Correia, FF; Guerra, EM; Rosa, TD; Fritzsch, J; Bogner, J;

Publication
IEEE 19TH INTERNATIONAL CONFERENCE ON SOFTWARE ARCHITECTURE (ICSA 2022)

Abstract
The promise of increased agility, autonomy, scalability, and reusability has made the microservices architecture a de facto standard for the development of large-scale and cloud-native commercial applications. Software patterns are an important design tool, and often they are selected and combined with the goal of obtaining a set of desired quality attributes. However, from a research standpoint, many patterns have not been widely validated against industry practice, making them not much more than interesting theories. To address this, we investigated how practitioners perceive the impact of 14 patterns on 7 quality attributes. Hence, we conducted 9 semi-structured interviews to collect industry expertise regarding (1) knowledge and adoption of software patterns, (2) the perceived architectural trade-offs of patterns, and (3) metrics professionals use to measure quality attributes. We found that many of the trade-offs reported in our study matched the documentation of each respective pattern, and identified several gains and pains which have not yet been reported, leading to novel insight about microservice patterns.

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